{"id":7657,"date":"2021-03-31T16:43:08","date_gmt":"2021-03-31T14:43:08","guid":{"rendered":"https:\/\/www.agingproject.uniupo.it\/la-ricerca\/pubblicazioni\/telehealth-approach-for-amyotrophic-lateral-sclerosis-patients-the-experience-during-covid-19-pandemic\/"},"modified":"2021-04-25T18:54:26","modified_gmt":"2021-04-25T16:54:26","slug":"telehealth-approach-for-amyotrophic-lateral-sclerosis-patients-the-experience-during-covid-19-pandemic","status":"publish","type":"pubblicazione","link":"https:\/\/www.agingproject.uniupo.it\/en\/research\/publications\/telehealth-approach-for-amyotrophic-lateral-sclerosis-patients-the-experience-during-covid-19-pandemic\/","title":{"rendered":"Telehealth approach for amyotrophic lateral sclerosis patients: the experience during COVID-19 pandemic"},"content":{"rendered":"

Background and objective
<\/strong>Specialized multidisciplinary ALS care has been shown to extend survival and improve patient’s and caregiver’s quality of life. During the COVID-19 pandemic, the management of patients suddenly changed and telemedicine has been proven to be as effective as outpatient care. We elaborate the experience with Telemedicine of a Tertiary ALS Center from an Italian geographical area with high infectious risk during the COVID-19 pandemic.<\/p>\n

Methods<\/strong>
19 patients were evaluated in telemedicine by a multidisciplinary team including a neurologist (clinical evaluation, intercurrent events, and drug prescriptions); a dietician (diet and weight monitoring); a psychologist (psychological assessment and support); and a physiotherapist (physiotherapy treatment and device prescription). Telemedicine was performed using the online platform \u201cIoMT Connected Care Platform (Ticuro Reply).\u201d<\/p>\n

Results<\/strong>
All patients reported a positive perception of talking face to face with healthcare professionals and were satisfied with how the team understood their problems. During video televisits, there was a change in the patient’s medication regimen in 11\/19; 2\/19 required pneumological evaluation and started NIV; and 9\/16 patients required prescription of devices. The mean monthly decline of ALSFRS-R before televisit was 0.88 (SD 1.17) and during televisit of 0.49 (SD 0.75). Bodyweight and daily caloric content remain stable. Reduction in HADS scores and stability in ALSAQ-40 were observed.<\/p>\n

Discussion<\/strong>
Our study positively reproduced the multidisciplinary approach currently used with ALS patients, trying to stabilize the functional and metabolic status and improving the psychological one. 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